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There are many privitol moments of my life but the one most relevant to me ultimately discovering P.E.M.F happened on 2009. This is when life put a new problem to solve in my line of sight literally and figuratively. Losing sight in my right eye was what finally got a Dr to take me seriously and refer me to a neurologist. After clinical history, combined with evoked potential test and MRI, I was given a M.S diagnosis. That first Dr"s bedside mannor left much to be desired. They told me to keep a job with good benefits, expect to have poor quality of life but not to worry. He assured me I'd probably live long enough to die of cancer or heart disease. No joke. I didn't resond very enlightened either. I left and immediately bought a pack of cigarettes, after having been quit for over a year.
Smoking was not the only poor lifestyle choice I had made throughout the first 30 years of life. I was a vegetarian, who didn't eat vegetables. I lived on nicotine, starch, caffeine and sugar. I partied way to hard and slept inconsistently. No thought or care was given to chemical exposure, mercury fillings or overuse of antibiotics, all of which were done in excess.
There are many other factors that likely had a hand in my body dis regulating. As a child, I had chronic ear infections, probably caused by dairy, which lead to tubes in and adenoids and tonsils out. On top of a mouth of amalgam fillings, I'd end up with root canals as a result of smashing my front teeth on concrete. 10 years of depo provera birth control and anoither 10 with an IUD surely impacted my hormones. Plus the timing of receiving the Twin Rex Hepatitis vaccine always has sat uncomfortable with me. Alas, just like the medical field, I have no idea what actually caused my M.S. Probably I created the perfect breeding grounds for dis-ease.
The thing that finally pushed my body and soul over the edge was the day that crushed me even more than the day of my diagnosis. My first child was delivered full term, after a beautiful pregnancy, unresponsive. Although he was revived and put on life support, he suffered severe brain damage and eventually died a second time in my arms.
As hard of a journey as grief is mine was made far worse for having an abusive partner. The added constant fight or flight to daily life amplified at this time. There was never times of safety, security or wellbeing. This pattern unfortunately continued during my second pregnancy, during which the M.S was diagnosed, and until my third child was 6 months old in 2012. This pregnancy added Graves disease to my poor health.
I eventually found the strength to protect my babies and myself and left my marriage. I could finally breathe but life had new challenges. I was now a single mom with a chronic progressive diagnoses. Thankfully one of the few good life choices I had made was higher education. With grit, perseverance and what my new wonderful partner calls sick-to-it-anice, I managed to figure it out and start a path of learning and healing.
I first realized something was wrong during my second pregnancy. I had moving patches of numbness, electrical sensations and odd feelings. My Dr glossed over it whenever I brought it up. Soon after delivery the blurred vision and eye pain started. Google told me lyme disease or M.S but I wasn't taken serious.
An optimist recognized my pale optic nerve as optic neuritis. Shortly after that first relapse, a second one took 100% of vision in that eye.
I became a patient at the largest M.S clinic in Canada, at a Toronto hospital. Not having much faith in allopathic medicine, it took some convincing to start daily, painful copaxone injection for several years. At least there was no known major side effects. I took a break during my next pregnancy and then skipping doses for a while. I was tired of the skin pocks, pain and constraint reminder of being sick.
Relapses were mild and usually related to illnesses or fatigue of raising young babies on my own. They would involve one symptom such as numbness, vertigo or weakness. They always resolved for the most part. Only my right eye stayed impaired but not as bad as before.
Most of the time I refused MRIs. I don't like the anticipation of waiting on results on progression or the sever reaction to the poisonous contrast dye. See, I always believed full heatedly that I could and would heal myself. Their MRIs and poor outlook never supported my belief. So I avoid them. But a new young Dr took over, who was amped up on promises of new drugs and concerned about new lesions. The one and only time a family member attended the Dr with me just happened to be this time. They, unlike me after years of doom and gloom, got scared for me. I now felt the pressure all around to level up on meds. Was I being an irresponsible mom by not doing what they offered as by best and only hope?
I took time researching and landed on Gilenya. It was scary to have so many tests to pass as a starting requirement and need hospital supervision to begin. I took it for approx 4 years. It went text book. No new lesions but every side effect, including constant infections, cancer scares and respiratory issues.
After the criminal behaviour of big pharma highlighted over the last few years, I finally said no more and stopped meds. FDA had released a warning on Gilenya, after I started, stating that ceasing treatment would result in a major relapse making you worse than before. So I slowly weaned off over months and all seemed well.
Then my life again hit a new bottom.
The first 13 years with M.S. now seems like a breeze. I had shown my disease who was boss. After being told that I'd probably be in a wheelchair within ten years, I completed a mini triathlon to mark the anniversary instead. I'd only ever given healing as much attention as my body demanded. Yes, I quit smoking, eat mostly healthy, meditated and worked out but I'd often lose attention and focus. Stress was clearly linked to the onset of my disease but I'd failed to manage it.
On Jan of 2022, my body just crashed. A fever over night resulted in losing the ability to use my legs. As if that wasn't scary enough, the sight in the remaining rye was gone two weeks later. No longer able to work or manage daily life I went on disability. But it didn't stop. One function and system shut down after another. Bowels, bladder, coordination, balance, complete loss of sensation except for my face and shoulders, my hands no longer could hold objects, internal temperature wasn't regulating, my chest was squeezed in an M.S. hug. Was my body going to survive if I kept failing so quickly?
No matter how dark things got, I never wavered in my belief that I could heal. I stepped up my quest for knowledge and experimentation. For the first time ever I strictly followed the anti inflammatory diet. Meditation and visualization became mandatory to my routine. It was really all I could do, seeing as i was blind and immobile. My family helped with reading labels, prepping food and feeding it to me. This taught them not only healthy eating but compassion.
Trust me when i say that I can relate to your pain, regardless of how dark it is. I vividly remember being trapped in my mind due to a failed body, having to crawl blindly. It is a difficult path to find hope in the darkness. But, I know it is possible. I got my mind right for long enough periods to make serious commitments to daily hygiene habits. I stopped watching the news, dove into meditation, started back with a naturopath and started 10 pass ozone therapy along with I.V. alpha lipoic acid. Detox supplements and ozone did provide some benefits. After treatment I'd often sleep 18 hrs and wake up with feeling in a new toe and patch of skin. But, they gave terrible die off reactions and drained my savings. I still wasn't much improved.
I booked a colon-hydrotherapy appt one day and happened to randomly stumble across P.E.M.F. But maybe not
To Be Continued
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